One of the goals of my blog was to help others that were going through Open Heart Surgery. In less then one year I have had the chance to communicate with complete strangers as they go through heart issues or support others that had open heart surgery. Today I stumbled on this support group:
Ben's Friends located at www.bensfriends.org
This support group was started by Ben who had a stroke caused by AVM. Originally, Ben started the website to support the rare disease of AVM (Arteriovenous Malformation) a brain disorder. And the site grew to help people that suffer from many rare diseases.
My disease is very common & there are many support groups in many communities. But, some diseases are very rare & support is difficult. As I have discussed in my blog, my "zipper club" buddies (like Engleman & Shuman) have been an awesome support group.
So, if you know someone that may suffer from a rare disease & needs support have a look at the website: Ben's Friends at www.bensfriends.org!
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